My Life With Adrenal Insufficiency

Two Weeks After My Iron Infusion An Update

Two Weeks After My Iron Infusion An Update

Two weeks ago I had my first Iron Infusion and today I went for my second infusion at the Royal Albert Edward Infirmary. I wrote a blog post on going for an Iron Infusion for the first time if you would like to read about my experience. Today I am sharing how the first two weeks have been since my procedure.

Well, after my first infusion I felt shattered and exhausted. I slept a lot for one or two days and didn’t really feel much of a difference during the first week. After about 8 days I noticed a small improvement in my tiredness levels. I was able to better get into a routine for sleep which is something I have struggled with over the past year. I was also able to get up in the mornings and make breakfast for my daughter.

That may seem like a simple task but for months I had been too exhausted and have relied on my husband to do this. So already I have been able to spend more quality time with Sylvia in the mornings. I have had to go and rest again once she had gone to school. I am not out of the woods yet and have other conditions to deal with but I have been able to stand up and do a few things.

I did have a bad day on Thursday. I woke up low in cortisol. I could not lift my arms or legs and felt dizzy. I knew my blood pressure was too low and at around 11am I collapsed on the floor. John helped me to my bed and I rested up for two days. I had to double my medication and I needed to take extra on top of that. Sometimes I can work out what is wrong and what has caused my cortisol to drop. However I did not have any infections or virus that I know of. I did not have a period or skin infection and so I am left not knowing what caused this episode.

iron infusion

Either way I have got through my episode and am now back to low energy but better than the exhausted shell I was for the past few months. I am pacing and noticed I am on top of the dishes and laundry and so I am able to do a bit more each day as I pace.

I do have this horrid bitter taste in my mouth and I don’t know what the heck it is. Trust me it is yuck! I am not pregnant! It’s something to do with my Iron I think. I went out once last week. We went to the park for a photo shoot and I went and sat on the park bench to watch. I even put makeup on for the first time in forever.

I have misplaced my glasses. I don’t have a clue where they are. It’s been a whole week and I am going to have to try and search again. Today I went to the hospital for my second infusion and I am hoping my energy will increase even more. That would be great. I will always have to pace but getting my levels right will surely help.

Angela x

25 Comments

  1. It must be so difficult having exhaustion all the time and honestly you are such a role model because it is amazing how much you have achieved under such conditions. I really hope that eventually things will get better x

  2. I do so hope things start to look up more soon. I know what it is like to be ill like you are at the moment and the quality of life can really suck. You are blessed to have supportive people like your husband around to assist you and who care. Best wishes to you as you go through this journey.

  3. It doesn’t seem that the iron infusion has done too much but hopefully it’s something which will develop in time x

  4. Oh that is nice that you were able to spend some more time with your daughter – she is gorgeous! Love those pictures so lovely. I hope you will become a whole lot better with this second infusion, being tired and exhausted all the time is really hard.

  5. It can’t be easy trying to run your household and handle the side effects of the infusion… Sending you lots of healing light and love!

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