Sharing is caring!

Addisons Disease is a serious and life-threatening illness where the Adrenal glands fail to function resulting in insufficient amounts of Cortisol and Aldosterone in the body. Here are 15 facts about Addisons Disease to help you better understand the condition.

addisons disease

Addisons Disease 15 Facts About You Need To Know

*I use affiliate links in this post. If you buy anything from my links I will earn a small commission*

Addison’s Disease is not easily diagnosed

Addison’s disease is not usually diagnosed until at least 90% of the adrenal cortex has been destroyed. This can take months or years and is often referred to as primary adrenal insufficiency.

Symptoms are common to other diseases

Some of the symptoms of Addison’s Disease include severe fatigue and weakness, loss of weight, pigmentation of the skin, dizziness and low blood pressure, nausea, vomiting, salt cravings, painful muscles, and joints.  These symptoms are common with many illnesses and diseases, so can be missed or misdiagnosed easily. 

Addison’s was identified in 1855

Addisons Disease was first identified in the UK in 1855. The condition is named after Thomas Addison a doctor who first wrote about the illness whilst working at Guys Hospital in London.

Addison’s Disease requires daily steroid therapy

People with Addisons Disease are steroid dependent. This means they are reliant upon taking cortisol medication every day. Cortisol is the “stress hormone” and without it, the body would go into adrenal crisis and eventually die.

Electrolyte imbalances are a real issue

If you have Addison’s Disease, you will also need to take a medication called Fludrocortisone. This is prescribed to replace the aldosterone steroid normally produced by the adrenal glands. Without Aldosterone in the body, there would be an electrolyte imbalance leading to low blood pressure and dehydration.

Common illnesses cause even more stress on an Addison’s patient

People on steroid replacement therapy will need to stress dose during times of illness such as infection, high temperature, and fever. Addisons patients will need to be aware of their wellbeing and any illness will need to be compensated to prevent Adrenal crisis.

Exercise can be dangerous

When someone with Addison’s exercises in a way that is more physically demanding than usual, they will need to take a little extra steroid medication beforehand to help the body cope with the added stress.

Emotional stress can cause issues in an Addison’s patient

Often sudden shocks such as being in a car crash, learning of the death of a loved one or a big argument can result in a need to increase Steroid coverage. Additional emotional stress can clear cortisol faster than usual and make an Addisons patient very unwell.

Something as simple as a dental procedure can be dangerous

Addisons Patients will always need extra steroid coverage during dental procedures, operations and certain hospital tests which place more than usual stress on the body.

The brain fog is real

Often when low in cortisol, patients with Addisons disease can develop brain fog and poor concentration levels. This can affect the ability to work out what medication is needed. Therefore it is important to always wear a medic alert band.

Adrenal crisis can be fatal

Addisons patients will need to carry an emergency injection with them in case of sudden adrenal crisis. The emergency injection can be life-saving. Many patients have died from an adrenal crisis and the condition should be taken seriously and can be life-threatening.

Stomach viruses can be deadly

If someone with Addison’s has prolonged vomiting due to an illness or stomach bug, they will need an emergency injection and immediate hospital treatment.

Temperature changes can cause steroid needs to change

Some Addisonians will need to increase their fludrocortisone medication when on holiday or under extreme temperature climbs around 30˚ Celsius. this will help to avoid dehydration and becoming dangerously unwell.

Steroid dosage must be monitored closely

Too much steroid coverage on a regular basis can result in Cushing’s Disease, weight gain, bone problems, diabetes, and a moon-shaped face. it is important for a patient to be on the correct dose so as to ensure they are not under or over replaced as both not enough and too much cortisol can have serious consequences.

Addison’s Disease is still misunderstood

Many people have not heard of Addison’s and it is not always familiar to some doctors or medical staff. It is always a good idea to carry a letter about the illness in case of emergency and just in case the people treating the illness do not understand the importance of emergency cortisol replacement.

I hope these 15 facts are useful and helpful. Please do share this post to help spread the word and awareness for Addisons Disease and Adrenal Insufficiency.

Angela x

addisons disease

You may also like the following posts on Adrenal Insufficiency

My adrenal crisis and the truth about how I feel 

What’s it really Like to Have Adrenal Insufficiency

Children have Adrenal Insufficiency Too

Why the Adrenal Pump is a brilliant treatment for Adrenal Insufficiency 

From Cancer to Adrenal Insufficiency – A Brave Story

 My First Magazine Appearance and the fight to Kick Adrenal Insufficiency in the Butt! 

I have an invisible illness

A Doctor Diagnosed with Adrenal Insufficiency