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Weekly Visits To The Hospital
Over the past few months I have been averaging one weekly visit to the hospital. I attend five different hospitals for Endocrine, Heamatology, for my operation follow ups and a private hospital for my adrenal pump. Going to the hospital for outpatient appointments and treatment can be a pain in the bum. We often have to travel some distance. My nearest hospital where I get my Iron Infusions is Wigan and is only about 30 minutes away.
The other hospitals, Preston, Manchester, Liverpool and my London hospital are a little further to visit. I am slowly getting used to visiting the hospital on a regular basis. You go often enough on the same day, you even get to know the staff and their personalities. You know who is friendly and who is a grump and sadly like when I was a school child, you get very familiar with the buildings.
Having health problems is really no fun and going to appointments isn’t ether. Some days I just want to curl up in bed and not bother going. I’d like to rest or postpone but I know I need to go when I have an appointment as there is a system and if I missed I could be discharged, be made to wait longer or miss out on important tests and medication.
I always like to take my diary with me and a pen when I go to hospital. I have not had a cell phone for over 8 months now. Yes can you believe I am a blogger without a cellphone. It is really tricky at times but I traded a monthly cell phone bill to be able to pay for my monthly medications and it’s a sacrifice I need to make for now. so when I do go to hospital I have time to think and plan. Sometimes however I feel sick and can’t plan. Sometimes when I have treatment I wish I were able to lay on a bed but often I have to sit in a chair for hours and it can get very uncomfortable. It’s the same for many patients. There are beds but they are reserved for the most sick patients.
Last time I went for my Iron Infusion there was a mix up with my medication. I was cannulated and then ended up waiting 3 hours before my treatment began. I then had my treatment and then had to sit and wait for observation times. It was hot and sticky and uncomfortable but I stuck it out. I think when getting treatment it is good to take a water bottle, some snacks to eat as well as something to read or do.
On my last visit one patient had a magazine. He was reading the horoscopes to all the nurses and telling them what would be happening in the coming weeks. It was funny and the nurses had a laugh. it kept us entertained for a good 20 minutes. I think hospital visits can be boring and there are often always delays, waiting and more waiting. If you go prepared with something to do it sure makes things easier.
I think next time I have an infusion I am going to take my husband’s Ipad and watch a downloaded movie. That would keep me busy. I am also going to take a personal fan as it can be so hot and warm and uncomfortable.
I’m glad I am getting the treatment I need. I always enjoy having a sandwich and a drink after treatment and appointments, it’s my little reward or treat for getting through another visit. On Monday I travel by train to London. I am having my one year follow up having been on the adrenal pump for a year. It has been a learning curve. I’ve had many visits to London but now I can do all my tests local, send the results and simply visit my private specialist once every six months.
I won’t be well enough to travel to London and back in one day. It would be too much for me so I will be staying in the YHA hostel overnight and then coming home on Tuesday morning. I won’t be well enough to enjoy London or go out visiting. However If I can manage it, and that is a big if, I might try and go somewhere nice for dinner after my appointment or if i’m able..visit the Theatre.. that’s a dream… I probably will be far too exhausted and I’m dreaming but we shall see how I am on the day.
Last time I went to London I stayed for four days to rest well and was able to visit Les Miserables. I would have liked to have gone with John but I was on my own. I loved the theatre. It was amazing. Maybe in six months for my next appointment we can go for the week and visit the theatre again but not this time. I just need to focus on getting to the appointment and then getting home the next morning.
Well these are just some of my random thoughts about the hospital and I thought I’d share.