Well as you may know I have a condition called Adrenal Insufficiency which really does affect my day to day living and that of my family. In order to improve my quality of life, I am wanting to fundraise to see a private Endocrinologist and to pay for the Adrenal pump, a medicine unavailable to me as an Adult via the NHS.
I’ve done all I can and decided the best way forward is to speak with my Endocrinologist at the end of August, (my next appointment) to see if he will help me as a private patient. My Endo is limited with what he can do as an NHS doctor and so he may be willing to help more if I were private.
The thing is, seeing the Endo I’ve been under for 3 years could in fact help save time sending files and notes from place to place and could help save having major tests redone which a private consultant may require.
In the meantime whilst I wait to see the specialist, I will save and fundraise as much as I can. The worst case scenario is my Endocrinologist will say “No” he cant help privately and then I would need to order all my notes for £50 and take them to a brand new specialist who is willing to help me privately. However that would mean a few trips to London and several tests and more money so my first aim is to save and see what my Endocrinologist says.
So that is my plan, I am going to be making a list of all the things I want to do to raise the money for the treatment I need and create a blog post of ideas of creative ways to fundraise for my medical treatment.
I should be able to get this help on the NHS but sadly this treatment which I know really does help is not available to me as much as I have tried to get it. So this is the next best thing.
I’m doing my best, I’m losing weight to get to a healthy BMI, this will help cut down the cost of medications in future and simply be better for my body. I’m resting and have started to make lists of everything I need or can do to focus on getting well.
This is the big plan and I hope it can work. I’ve come a long way in three years and had so many tests, I have been sick and in and out of hospital so many times and it’s time to move on with my plans and goals.
The huge thing is I know a Endo who works with the Adrenal Pump, it’s just having the money and resources to be treated.
Fundraising for summer, Here I come.
If you have any ideas of ways to fundraise please do leave a comment below.