This week has been very stressful and crazy and some might liken me to Little Red Riding Hood, trying to do a simple task, like travel through the woods to visit Grandma and dealing with the big bad wolf.
For me that would be my illness Adrenal Insufficiency. You can read all about my experiences in the Adrenal Diaries. The only thing is I don’t exactly have a stripling Axe man to come and save me.
What I do have is a blog and with this blog (my weapon) or my Axe so to speak I will speak out and raise awareness of Adrenal Insufficiency.
This can help educate others on the condition and help teach parents which children of AI or help anyone with or without chronic illness looking for inspiration to deal with the challenges of life.
For me, I am fighting to get better treatment. I have come to a dead end with the NHS. My appointments are more and more apart, when I go into hospital I am not seen by the correct Doctors, as they are apparently too busy and the tests I need are taking years when they should be much more regular.
So I will use my blog, my weapon of choice to speak out, to educate, to share, to give myself therapy and save myself from going crazy.
I don’t like things being out of control. Just like Red riding hood didn’t feel quite right seeing the wolf in grandmothers clothing. I bet it stressed her out. Being sick stresses me out and I need to do something. I am going private.
I am going to save the funds and see a Endocrinologist who has time for me because he is being paid. I don’t want a one minute meeting and a one minute decision and to go back to the back of a waiting list.
I want to be treated right, for the right treatment, to be heard, to have a chance at being a healthy or healthier mum, of having a better quality of life and strangely through my blog I will one day get this.
I will blog and write and share. I will also earn a living and raise the funds for the private appointments and the adrenal pump and any other medical care I need and I will do it against the odds.
Today I am little Red riding hood and today I will fight my battle for better care starting with a phone call to the Endocrinology team and creating a plan to blog, to earn, to raise awareness, to do all can to get myself more well and be more abled, less disabled.
More independent, less dependent, More a carer and less cared for. More a healthy Mother and less a sick mother.
I am Red Riding hood today and I will conquer Adrenal Insufficiency with my blogging Axe.