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My Life With Adrenal Insufficiency

Chronic Illness Means More Time With Your Child

chronic illness

Chronic Illness Means More Time With Your Child

Hi there,

Well I’ve not been feeling too well the past 24 hours and when I woke up I just felt kind of deflated. It’s the adrenal insufficiency again. I can’t tell what’s affecting me but a tell tale sign is when I try to life my arms and they feel weak and shaky. So I have spent the most part of the day In bed and Sylvia has watched children’s tv and cartoons.

At lunch time Sylvia came to say she was hungry. I suggested she make someย sandwiches. after all she is 9 and does know how to make a sandwich. I do like to make food for Sylvia but she also enjoys playing waitresses sometimes and creating menus.

Well she came up with an idea. She asked me…do I want a original, a classic or a Sylvia’s special. I said I’d like a Sylvia’s special. My lovely daughter only went and made me the cutest ever sandwich using our cookie cutters. It was creative and thoughtful and so kind of her.

sandwiches

I came downstairs to eat and rest some more and Sylvia brought her lovely creations into the lounge for me. She did an amazing job and was so pleased when I offered to take a photograph of her super accomplishment.

sandwiches

Sometimes I wonder what life would be like if I did not have chronic illness. If I was more well, would my daughter have the talents and skills she has? Would I be working still as a teacher, earning a living and most likely not enjoying my job, resenting the fact I am at work and unable to spend time with my child.

Chronic illness can have a silver lining

I guess the silver lining to having chronic illness is that no matter how sick I get, we do spend quality time together and I think this is more than it would be if I were well and out at work. Whether it is sitting in bed and talking, laying on the sofa whilst Sylvia watches a movie. We have movie night on a Friday and Saturday and yes I may not always watch the movie wholeheartedly or may even be multi tasking but it’s okay, we are together and that’s what I cherish and what Sylvia loves, just being together in the same space, the same room even if we are doing our own thing.

Angela x

20 Comments

  1. What a gem. So creative! And it is wonderful you look at the positive side to being ill. These moments you will look back on and not remember how you felt being ill, but how you felt when she made these for you ๐Ÿ™‚ so super sweet!

  2. Those sandwiches look great, I would eat them all! I don’t have your difficulties but when I had flu my girls taught themselves to cook pasta from a book. They would never have done so otherwise.

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