It’s week four of the Summer Holidays and things have not been going too well. During week one I managed to go out and spend a half day with my daughter at Blackpool Pleasure Beach which was lovely and then we spent a few hours another day at Sandcastle Waterpark. Following this I was totally burnt out. Sylvia went to my grandparents for week two of the holidays and when she returned for week three my health had gone backwards.
I’m not sure what is wrong. I have been feeling pain and nausea daily and just needed to sleep a lot more than usual. I have struggled to write and do the amount of blog work I was used to doing and even writing this is a little of a struggle but I wanted to say how it is.
I have Adrenal Insufficiency but also Growth Hormone Deficiency, Iron Deficiency, Zinc, Folate, Vitamin D and Vitamin B12. My Adrenal Insufficiency is under control right now but something is really off and I have collapsed a few times. I really am not sure what is wrong and so I am going for more tests to determine what has dropped and what needs fixing. I had a good 6 weeks after my Iron Infusion but am thinking this may be the issue again. However It’s so hard to work out at times.
Just as we prepare for our family holiday to Disney Land things have gone downhill. So for week three I rested. I rested each day and sent Sylvia and John out for Ice cream, to the movies and so forth. They had a good time but I was not with them and it was obvious my daughter was a little disappointed. She is really tough for a 9 year old and knows I get sick . lot and sometimes I simply just need to rest.
I have been wanting to visit Primark badly to get some Disney themed items for our holiday but have decided not to bother. I am not going to be well enough. I did manage to order two pairs of Disney Ears online and will send my hubby to Poundland to get books for Autographs. I can’t do all I wanted but this is something I am used to. The good news is I have researched and I will be able to rest up in the hotel a lot and use a Green pass at Disney land when I am well enough to visit.
I have also really wanted to do my hair for the first time in six months but have not had the energy to book something in or get it done. That will have to wait.
It’s going to be wonderful I just know it and as sad as I feel about being so unwell at this time, we are still going as a family and will make this work. It was really fun the other day. John and Sylvia did a photo shoot. She tried on the Disney Outfits we got for our trip and had real fun. I laid on the sofa and played music from each movie as she had her photos and Sylvia just loved it.
We are taking my special needs brother on holiday with us. He is over from New Zealand and this is a chance in a lifetime for James. I really am looking forward to this. I know I can’t do the things I want to and have to just accept this is the way it is. If I had my way I would have been making things and preparing and going shopping but this is life and reality and I really am grateful for online shopping as I have still been able to get a few things.
It’s taken a long time to save up for our first family holiday. Everything else we have done has been a day trip or blog related so this is our first “Family” holiday and I am super proud of saving up for this. Once the holiday is over it will be back to reality and I will need to start saving for a new Adrenal Pump as the one I have is second hand and could fail anytime. I will need just over three thousand pounds and that will be my next goal but I didn’t want Sylvia to miss out on a holiday every year of her life and this year she is going to have on.
Sun or rain, sick or fine. We will have a lovely holiday, just me and mine.