Mama's Life, Reviews, Home and FamilyMy Life With Adrenal Insufficiency

The Adrenal Pump A Demonstration How It Works

adrenal pump

For those of you who have been following my journey with Adrenal Insufficiency, you may recall my fight to access the Adrenal pump, a treatment known as subcutaneous hydrocortisone infusion therapy.

It’s been an ongoing battle and we did all we could to get me onto the treatment. This involved 3 years of searching for a Doctor, saving every penny we had and travelling to London many times.

Over a year ago, I successfully began treatment for the adrenal pump. It has significantly helped me. Especially in learning to manage my condition better and quickly treating low cortisol episodes so I do not end up in hospital.

Before the pump I had 22 stays in hospital. Whilst I have needed extra medication regularly and have continued to be unwell, I have managed to stay out of hospital for Adrenal Insufficiency. I have saved the NHS (our public health system) hundreds of thousands and this pump has helped me treat myself when heading towards Adrenal crisis.

Read Popular posts on Adrenal Insufficiency 

Today I wanted to share a video about the pump. It is a detailed explanation and demonstration of exactly how the pump works for me and how it helps me.

I have 3 new goals which I am working towards in regards to my health and the adrenal pump.

1 – To continue to spread awareness for Adrenal Insufficiency and advocate for the adrenal pump in the hope it will one day be available to many more of us suffering from Adrenal Insufficiency.

2- For me to raise the funds for a new pump. I am currently using a second hand one which could fail at any time.

3- To get my pump supplies funded by the NHS so It is not such a burden on my family. 

So here is the video I have made. Please do share and help me with my efforts to raise more awareness for my condition and the need for the adrenal pump to be available to many more.

 

I hope you like my video.

Angela x

I have over 100 Blog posts dedicated to ADRENAL INSUFFICIENCY. I am told they are really useful and encourage you to take a look at my Adrenal Posts.

 

 

Read Popular posts on Adrenal Insufficiency 

 

39 Comments

  1. three years of finding a doctor and 22 stays in the hospital, wow! im in disbelief! i have never heard about this before and your article has surely made me curious! u are truly a strong individual !

  2. Thank you for sharing your journey with us. It was interesting to watch the process of delivery for the medicine. I really hope that you are able to find help paying for the supplies. I think it’s ridiculous how companies refuse to help pay for these life saving meds for people who truly need them. We literally leave our lives in the hands of someone else when it comes to healthcare. I commend you for sharing your life to get the word out about your condition.

    1. It is hard to get help and I think it is mainly due to the illness being rare in comparison to other conditions. I will keep fighting to raise awareness.

  3. I have to admit that it’s the first time a hear about adrenal pump, so your awareness journey is working. I’m happy to hear that this helps you, and it will help other people as well in your condition. I can only image how hard it was for you to be so much in the hospital. p.s. the dog is so cute 🙂

  4. I think what you are doing is great. I had heard of the condition but it’s not something I am really aware off but it is always important to know anyway, just in case someone would need me to know.

    1. It is important to be aware. I just met and A&E Doctor who was sharing my hostel room and she had no idea… now she is educated!

  5. I watched this video on YouTube last night and it was so interesting…I obviously knew you had the pump but had no idea how it worked…It makes me so angry that things like this are not available on the NHS x

  6. What a good idea to educate people on how the pump works. Your disease is so little known that any information you can give is helpful so that others can understand what you and others like you are going through. Great job educating people and staying positive!

  7. You have definitely been through a lot to get what you need for your health! I can’t believe and am disgusted that getting the pump you need- new, not second hand- has become such an obstacle for you!

    1. I will one day get a nice new shiny one! So long as it works but i don’t want it to fail and have to go back to tablets which I struggle to absorb!

  8. I’m sorry that you are dealing with this. Your writing has helped me to understand more about adrenal insufficiency. Thanks for raising awareness. Sending you hugs and positive thoughts.

  9. I learned a lot watching your video. I think it is terrible it took you so long to get the pump. It should definitely be covered.

    1. It is sad it has taken so long – particularly as it was during my daughter’s childhood but I have to keep up the fight and maybe it wont be the case for others who become diagnosed with the same condition.

    1. Thanks Amber. It is good to share…especially as it’s something I talk about so much. It can help others to get what on earth I am going on about.

  10. Your journey with this disease hopefully will help others. You have of info here. I am glad the pump works well for you. Stay strong.

    1. I’m sure it will. maybe there is a reason for everything and my fight will for sure help bless other lives. It has I am told each day int he emails I receive.

  11. The instructions are clearly detailed indeed. It is much easier to follow the demonstration with a how-to video clip. Thanks for your helpful post about adrenal pumps!

  12. This is a great video and explains a lot. It actually looks like something they did for my uncle with diabetes. I am not sure whether insurance funds that sort of things though because he was pretty well off as a real estate salesman. I hope you can encourage insurance and your NHS to carry this as part of their regular services.

  13. It’s a tough journey, I am inspired of how strong you are. I pray that you will achieve the goals you listed and many more people will be aware of the illness.

Leave a Response

Comment moderation is enabled. Your comment may take some time to appear.

Share303
Tweet
Pin
+1
303 Shares