My Life With Adrenal Insufficiency

My 2016 Health Goals Mid Year Review

gastric bypass

At the start of 2016 I set some significant health goals. We are now mid year and I felt it was time to review these and see how far I’ve come and if there is anything that needs changing.

My 2016 Health Goals Mid Year Review

For those who don’t know, I have a diagnosis of Pan-Hypopituitarism. This means a small pea size gland in my brain is damaged meaning I don’t make the right hormones for my body to function correctly. As a result I have Secondary Adrenal Insufficiency and Growth Hormone Deficiency. I also have Pcos, issues with irregular periods and prolactin levels. These are all hormone issues which when the Pituitary is healthy would function as normal.

Having Adrenal Insufficiency means, I have to put the right hormones into my body. One of these and the most life threatening one is called Cortisol. I do not make cortisol and it causes me to be very unwell. I’ve been in Hospital about 22 times in almost three years and counting.

I set 5 goals for 2016 in my January post  Health Goals and Adrenal Pump plan. All my goals were huge and so here is my review and update.

Weight Loss

Goal

Well in January I said I wanted to lose weight to improve my BMI, prevent diabetes and reduce my daily steroid dose.

Acheivement

I began the Liver Shrinking Diet in January and after three cancellations I finally had a Gastric Bypass in March 2016. This was by far the hardest thing I’ve been through in my life. It’s been life changing, emotionally and mentally difficult as well as physically hard.

I am now 14 weeks out and things are starting to improve. I have a long journey to go but have so far lost 3 stone since my operation and 5 stone since I began my weight loss Journey.

gastric bypass

 

New Endocrinologist

Goal

My second goal was to search for an endocrinologist who could help me with my dream of getting better medical treatment in terms of the Adrenal pump. I had a goal to find an Endocrinologist on the NHS. I have been looking for almost three years for an Endo to help me with this.

Achievement

I did have a referral to Manchester Hospital last year which took six months. When I finally got to see the consultant in April the specialist I wanted to see was no longer working there and so I saw a female Endocrinologist who was rather rude and had no interest in helping me at all.

I also tried to see a NHS specialist in Chorley where I live when I was in Hospital in May. I was told I needed to see a Consultant but no one was available. I spent 8 days in Hospital without seeing an Endocrinologist and then was sent an outpatient appointment which has been cancelled twice and is now rescheduled to October.

To be honest, It’s a massive waiting game, almost a year when my health is still not right and we made the decision as a family to see a private Endocrinologist who is willing to work with me and yes it cost money but I am being taken seriously. On Thursday I will be starting an Adrenal pump trial for 4 weeks.

 

Adrenal Pump

Goal

To save and fundraise for my own Adrenal pump

Status

Well, as I said, I’m starting a one month adrenal pump trial.. WOOHOO!!!! which while expensive will give me a firm knowledge if this works well for me. By the end of August I will know!

I still need to save up for the actual pump which is just under £3000 and monthly costs for once the trial is over. There is no way I can save that in a month. I have been trying to fundraise and sell things and will look at what other options are available once the trial is over.

I guess the worst case scenario is to come back off the pump and go back on tablets until I raise and save the funds. At least I will know if this is going to work for me.

I’ll also try and do whatever blog work I can to help raise more money and keep on selling little things I don’t need. Sylvia was due to do a sponsored jump but she had a cold and I had a virus so this has been postponed for a few weeks. We will get there though and I think I have made huge progress in the past six months.

All other goals, which include building my muscles and getting the right type of home- an adapted home will go on hold for now. We are not getting anywhere with that and have to focus on one thing at a time.

So, that’s my update and I’m really excited to be trialling the pump on Thursday! I almost can’t believe it. I have gotten this far and fought so hard to try this and I will in less than four days.

Read more about my Gastric Bypass Journey in my Gastric Bypass Category. You can read about My Adrenal Health in The Adrenal Diaries.

My Health Journey

20 Comments

  1. Angela, As long as I have been reading your blog, I didn’t know you had pan-hypoit…..that’s my diagnosis also. I’m still stuck at 30mg of HC daily, can’t get any lower, and I have tried. I’m very interested in seeing how you will do on the pump, I’ve never discussed it with my doctor, so your experience will be helpful to me in making a decision about using it myself. Keep up the good work with your diet!! You look fab!
    maureen

    1. Thanks Maureen. I only just got this complete diagnosis from the private endocrinologist. The NHS just label it all separately but all the conditions are under the umberella of Panhypopituitarism. 🙂 I knew it but didn’t have it written down officially.

  2. Well done you with the weight loss, and I hope the adrenal pump trial goes well for you – it sounds like a much easier option in day-to-day terms. Good luck with raising the money, and I’m sorry you haven’t been able to access it via the NHS!

    1. Thanks Jess. It’s been a tough 3 years fighting for something I think will help me. I’m slowly making progress and hope to somehow miraculously get this pump permanent!

  3. Considering how unwell you are and have been you have made incredible progress and I am so proud of you. You should be really proud of yourself, I really hope the Adrenal pump works I will keep my fingers crossed xx

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